HSS 3101 Lecture Notes - Lecture 24: Syphilis, Dementia, Breakcore
Document Summary
Vulnerability: substantial incapacity to protect one"s own interests. Examples of vulnerable populations: lack of capability to give informed consent, lack of alternative means of obtaining medical care, under 18 years of age, part of minority group, pregnant women. Special provisions required to protect the rights and welfare of vulnerable persons. Halfway into an interview a participant with dementia (accompanied by their caregiver) questions where they are, what they are doing there, and mentions wanting to go back home. Wwii - nazi experiments - the twins of auschwitz. Ethics in qualitative research looks a bit different Quantitative research is physically invasive qualitative research is socially invasive. Both place participants at some level of risk and require minimization of potential harms. Both have fundamental goals to: at minimum, strive to leave people no worse off than before the study: ideally, participants experience some sort of improvement.