NURS 370 Lecture Notes - Lecture 8: Xerostomia, Cerebral Palsy, Defecation
Document Summary
Each year, about 5 will die from life threatening illness. Although the number of deaths per year are low, the emotional, social and financial impact is extraordinary. Children, parents, siblings, extended family, friends involved o. Parent must be present with child and lose work (loss of family income) Reduced quality of life, loss of family income, inconsistency in supports available. Active, holistic approach to care which focuses on relieving the physical, social, psychological and spiritual suffering experienced by children and their families who face a progressive, life-threatening (life-limiting condition) Helping them to fulfill their physical, psychological, social and spiritual goals. Enhances choice, relieve suffering, and ensure the best quality of care during living, dying and grieving. Child and family centered approach to care that is based on shared decision making and sensitivity to family"s cultural and spiritual values, beliefs and practices.